We have settled into our room here at Birmingham’s Children’s Hospital. Needless to say, it’s been a long day. Cole has really done well. Right now he is trying to rest and the pain seems managed. He has had a few meltdowns – one in recovery and then one with us here in his room. It’s hard to tell if it is frustration or pain, but we think it is frustration. He wants out of the cast already and asked when he can go swimming. We didn’t have the heart to tell him that he has a long road ahead of him in his cast. He has a bit of a sore throat from being intubated, but he’s enjoying popsicles and Sprite.
Dr. Killian felt good about the surgery. He ended up having to do the more extensive of the procedure options. First was the tenotomy to lengthen the tendons that have shrunk as his femoral bone compressed. This will hopefully (after physical therapy) give him a better flexibility, range of motion and strength in walking/running. The second procedure was the osteotomy of the femoral head. Because his had flattened, it had to be cut and turned for the best hope for regrowth. They took his existing bone and turned it so that one of the rounded sides would sit flush with his hip socket. The more damaged, flattened side rotated and prayerfully will start to regrow in this next phase of Perthes. A titanium plate and 6 screws were placed in to hold everything in place. These will be removed in 2 to 3 years.
Cole then had to be fitted with a one and one-half hip spica cast. It looks very similar to this image other than his extends much higher on his chest and his 1×1 wood spreader bar runs on an angle from left thigh to right ankle. As I mentioned, he is not a fan of the cast. At this point it looks like he will need to stay in it for 4-6 weeks, which is longer than we were praying for. We will have a recheck at 2-3 weeks and to have part of the cast removed so that the stitches can come out (he has a larger incision on the left side of the hip and a smaller one on the groin side). Then the cast will be reformed.
His pain is being currently managed by IV and an epidural line. These will stay in throughout the weekend. If everything progresses, we could be discharged on Sunday.
This would be a good time for me (and I’ll speak for Brooke) in thanking each of you for following our journey and more importantly standing with us in prayer. I don’t know if it would be possible to feel more loved and well supported by our community of friends and family. The power of God’s presence in answer to prayer has been tangible for all of us. And thanks for all the emails, texts, phone calls, visits and FB messages/comments. We most certainly echo Paul’s sentiments in Philippians 1:3, “Every time I think of you, I give thanks to my God.“
We aren’t exactly sure what’s next. But we know who does know and who promises to meet us in the next. And we know we are walking arm in arm with great friends like you who will discover what’s next with us! Much love to you all. Soli Deo Gloria!
7 thoughts on “What’s Next?”
God be with you guys; get some rest!
Big, bold prayers are continuing! God is Cole’s Great Physician and is covering him with His mighty healing power. Will continue to claim Psalm 91 covenant promises over Cole as well as healing prayers. God remains “large and in charge.” Margie Allen (friend of Bev’s) and my prayer partners
Todd and Brookc, You don’t know me. I am a high school / Granada Presbyterian church friend of your mom, Bev, . We reconnected through Facebook a number of years ago and that is how I have become acquainted with your family…I’ve seen so many pictures of your handsome sons over the years on Bev’s page including your newest son born just a few months ago. I was so sorry to learn of the Perthes diagnosis for Cole through Bev and I woke up this morning praying for all of you. I’ve just read Todd’s blog post surgery and am glad that Cole’s pain is manageable. I know you have so many friends and a church family that are a wonderful support to you. I will add my prayer to theirs that Cole will adjust quickly to the cast with a minimum of discomfort and frustration and that his healing from the surgery today will be rapid and highly successful. Love to all of you, Gwen Sloop
Praying! I hope today finds rest and relief from pain for Cole.
Todd, I knew you as a young boy when I taught at Merrill Road with your mom. I have just learned of the journey you and young Cole are on. I pray that he will heal quickly and that the doctors were able to be fully successful so Cole can have a happy, healthy life. May God grant many blessings to you and your family…..you have been through so much, now perhaps you will begin to see the light at the end if the tunnel.
Sorry that it’s been so hard for him. The Sheffields are praying!
Precious boy! Praying in many ways for Cole and your family. May this be a light and temporary affliction when looking in the rear view mirror at this time in life that is far outweighed by the Glory revealed and the physical restoration to his body. Walking (or body casting) through tit will not feel light and temporary, I am sure, but may graces await your family that can carry you through it. As part of the Body of Christ, I want to help carry your burden in any way you need. <3, Karen