Posts Tagged ‘recovery’

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It’s really hard to define normal in a household with four boys.  Seems like everything is always changing.  And Cole’s “normal” has most certainly changed over these last two years.  But we’ve learned to roll with the punches and embrace each change that leads to a new normal.

Recovery here at Brooke’s parents has been far better than recovery in the hospital room, but this was true last time as well.  Cole is learning to adjust to his very limited mobility, although he has his moments of non-compliance.  Like when Brooke turned her back yesterday and then returned to find Cole had moved himself from the couch to his wheelchair.  He’s not fully understanding why he just can’t get up and go.

But the new normal has him sleeping fairly well through the night.  Each night has been better.  He’s limited in sleeping positions, but we’ve managed to sleep without his leg immobilizer on, which I know has been a welcomed breather (for him and for his leg)!

During the day, we are thankful for conversation, brothers, grandparents and technology.  We move from movies, to games, to the iPad, to card games, to books and then wheel around the house from time to time.  Cole is getting pretty adept at maneuvering by himself in the wheelchair.

Praise God that his pain has been very minimal.  In fact, we aren’t using much of his prescription pain medicine.  This has been a huge answer to prayer.  As has been the progress of his recovery since we have been discharged from the hospital.  So again, thanks for following our journey, supporting us and praying with us.  We are believing God for continued health and healing for Cole because of His grace and goodness.  “But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.” (2 Corinthians 12:9)

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What’s Next?

Posted: June 19, 2014 in Family Life
Tags: , ,

ImageWe have settled into our room here at Birmingham’s Children’s Hospital.  Needless to say, it’s been a long day.  Cole has really done well.  Right now he is trying to rest and the pain seems managed.  He has had a few meltdowns – one in recovery and then one with us here in his room.  It’s hard to tell if it is frustration or pain, but we think it is frustration.  He wants out of the cast already and asked when he can go swimming.  We didn’t have the heart to tell him that he has a long road ahead of him in his cast.  He has a bit of a sore throat from being intubated, but he’s enjoying popsicles and Sprite.

Dr. Killian felt good about the surgery.  He ended up having to do the more extensive of the procedure options.  First was the tenotomy to lengthen the tendons that have shrunk as his femoral bone compressed.  This will hopefully (after physical therapy) give him a better flexibility, range of motion and strength in walking/running.  The second procedure was the osteotomy of the femoral head.  Because his had flattened, it had to be cut and turned for the best hope for regrowth.  They took his existing bone and turned it so that one of the rounded sides would sit flush with his hip socket.  The more damaged, flattened side rotated and prayerfully will start to regrow in this next phase of Perthes.  A titanium plate and 6 screws were placed in to hold everything in place.  These will be removed in 2 to 3 years.

ImageCole then had to be fitted with a one and one-half hip spica cast.  It looks very similar to this image other than his extends much higher on his chest and his 1×1 wood spreader bar runs on an angle from left thigh to right ankle.  As I mentioned, he is not a fan of the cast.  At this point it looks like he will need to stay in it for 4-6 weeks, which is longer than we were praying for.  We will have a recheck at 2-3 weeks and to have part of the cast removed so that the stitches can come out (he has a larger incision on the left side of the hip and a smaller one on the groin side).  Then the cast will be reformed.

His pain is being currently managed by IV and an epidural line.  These will stay in throughout the weekend.  If everything progresses, we could be discharged on Sunday.

This would be a good time for me (and I’ll speak for Brooke) in thanking each of you for following our journey and more importantly standing with us in prayer.  I don’t know if it would be possible to feel more loved and well supported by our community of friends and family.  The power of God’s presence in answer to prayer has been tangible for all of us.  And thanks for all the emails, texts, phone calls, visits and FB messages/comments.  We most certainly echo Paul’s sentiments in Philippians 1:3, “Every time I think of you, I give thanks to my God.

We aren’t exactly sure what’s next.  But we know who does know and who promises to meet us in the next.  And we know we are walking arm in arm with great friends like you who will discover what’s next with us!  Much love to you all.  Soli Deo Gloria!

ImageI guess this idea of road has been on my mind throughout this journey.  In some ways it makes a lot of sense to look at our journey in this life as a road.  But it also seems a bit to simplistic to look a life as a road because there is so much more to life than simply getting from point A to point B.  Now make no mistake… point B – our final destination is of utmost importance.  In fact, it’s been well said that if you don’t know where you are going, then you will most certainly not get there.  But what if life isn’t meant merely to be a road?

Our faith has really shaped out this journey we are on with Cole and as a family.  So it seems more appropriate that we would look at this journey as more of a story than a road.  We all love stories – especially good ones.  And really there is only one story that has been and is continuing to be written and that is God’s Story.  God’s Story is one of creation, fall, redemption and restoration.  A story of God’s amazing love for His creation and His relentless pursuit of their hearts.  We are all a part of that story and that story is a part of all of our stories.  John Eldredge says, “The true story of every person in this world is not the story you see, the external story. The true story of each person is the journey of his or her heart.”

God is writing Cole’s story.  And he’s writing a story of restoration and redemption.  But far more than his story of physical restoration and redemption – the more important story is the journey of His heart.  I sit here in the waiting room (waiting, yet again) to see my son – he’s out of surgery and in the recovery room.  And yet I can’t help thinking about his road story to recovery.  I can’t imagine how God is going to use this medical part of his story to tell the grander narrative of God’s Story.  I long for the day I will get to hear him share his story of God’s love and physical healing.  But I also long for the day when He realizes his story is rooted in God’s Story.  A story of God’s love and pursuit of his heart – a story of His grace and mercy – a story of His power and grand purpose.  And how exciting it will be to see those stories intertwine.  God speed that day.